Were you or a family member just diagnosed with a bleeding disorder?
We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.
The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.
BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.
Applications for the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) are now open. NYLI is a 3-year program that provides youth (18-24 years old) in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others. This is a fantastic opportunity for young adults in the bleeding disorders community to gain skills in public speaking, facilitation, advocacy, and the ins-and-outs of non-profits – as well as specific training in professional development. Applications are due October 31st. For more information and to apply, visit:National Youth Leadership Institute »
Registration for NHF's 70th Bleeding Disorders Conference, which will be in Orlando, FL from October 11-13, is open. This event provides you a chance to meet other families throughout the country who are also part of the bleeding disorders community, while learning and having fun. Click on the link below.Learn More »
Unique paid opportunity!
Rare Patient Voice connects patients and caregivers to surveys and research studies and pays you for your time! For just signing up, you will receive a $5 gift card and BDAI.ORG will receive a $5 donation for each qualified person who signs up and types “ BDAI " in the "How did you hear about Rare Patient Voice?" field.
If you would like to sign up, click on the link below:
Are you an Amazon shopper? Did you know that as you shop on Amazon, you can support Bleeding Disorders Alliance Illinois with each Amazon purchase? All you have to do is log on to https://smile.amazon.com/ with your regular Amazon account and select the nonprofit you wish to support. With each purchase, Amazon donates 0.5% directly to that nonprofit. Sign up to support BDAI!Amazon Smile »
We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.
BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.
BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.