Newly Diagnosed?

Were you or a family member just diagnosed with a bleeding disorder?

We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.

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About BDAI

The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.

BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.

Next Event All Events »

2018 Statewide Family Education Weekend

April 21 - 22

Northfield Inn Suites
3280 Northfield Dr., Springfield, IL 62702

Looking towards the future, this year we will focus our attention on the latest news hitting the shelves in the bleeding disorders community with the theme “Preparing for the Ever-Changing World of Bleeding Disorders”. We have planned a full array of programs and presentations to arm you and your family with quality information, as well as a special event for Saturday night which will give everyone the chance to reflect, remember, and celebrate the bleeding disorders community as well as commemorate World Hemophilia Day. We will be hosting some of the best educators and speakers in the state, and all breakout sessions aim to provide you with the necessary information to continue receiving top of the line treatment and care.

Be on the look out for invites and registration forms soon! If you would like to attend, but are not on our mailing list, please contact Tessa McConnell at TMcConnell@bdai.org or call 312-427-1495.

Invite » Proposed Agenda » Registration Form »

News

Amazon Smile

Are you an Amazon shopper? Did you know that as you shop on Amazon, you can support Bleeding Disorders Alliance Illinois with each Amazon purchase? All you have to do is log on to https://smile.amazon.com/ with your regular Amazon account and select the nonprofit you wish to support. With each purchase, Amazon donates 0.5% directly to that nonprofit. Sign up to support BDAI!

Amazon Smile »

CHES Factor Retreat

Join us for our 7th annual weekend of education, support, and fun for those affected by FVII deficiency and their families.

Begins: Friday, April 6th, 2018
Ends: Sunday, April 8th, 2018

Location:
Newport News, VA

Pre-Registration - Opens 2/1/18

Pre-registration opens February 1, 2018 at 9a (EST). First preference is always given to families who have yet to attend the Factor 7 Retreat. Even if you cannot attend, please pre-register! Pre-registration metrics are important to overall data reporting for continued funding. As always, our goal is to enroll as many families to this program as possible and your patience is appreciated.

Schedule:
We have extended the schedule to include lunch on Sunday! Topics will include: Bleeding tendencies, men, women and teen breakouts, movement and wellness, self-infusion, civil rights/504 plan, and the psychosocial aspect of living with a chronic medical condition. At your request, we are planning for some hands-on learning and trying to build in a little more informal social time.


Support BDAI While Shopping!

If you use Amazon, consider supporting BDAI while you shop, its easy! Instead of logging into amazon.com, simply go to smile.amazon.com instead and choose the Bleeding Disorders Alliance Illinois as the charity you wish to support. Then, when you shop Amazon will donate a portion of your purchase to support BDAI at no additional cost to you. Spread the word!

Amazon Smile »

HFA Teach Immersion Program

HFA is hosting two TEACH Immersions, including one led in English October 21st-24th, 2017 and one led in Spanish, November 4th-7th, 2017. TEACH will offer 24 men, women, moms, and dads from the bleeding disorders community, for three days of educational programming and advocacy training in Washington, DC. This training is designed to educate participants about the history of bleeding disorders and advocacy efforts, the legislative process, current policies affecting the bleeding disorders community, and tools to be a better advocate. If you want to learn more or apply, click the link below.

Apply Here »

SponsorsAll Sponsors »

BDAI Partner Council

We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.

BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.

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BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.


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