Diamond Jubilee Gala
This year, BDAI is celebrating 75 years of serving the Illinois bleeding disorders community. The 75th Anniversary Diamond Jubilee is your chance to make a difference for children and adults with bleeding disorders. Donations received will help support those with bleeding disorders across the state. Thank you in advance for your generous donation.
The 75th Anniversary Diamond Jubilee details:
When: Saturday May 4th, 2024
Time: 6:00 PM (CST)
Where: Chicago Marriot Southwest
1200 Burr Ridge Parkway
Burr Ridge, IL 60527
Early Bird Registration: $100 per person or $800 for a table of 10 [if registered by April 15th]
Registration: $150 per person or $1000 for a table of 10 [after April 15th]
*Registration information must include all the names of those who are attending*
For a table reservation, contact Lily Schwartz at (312) 427-1497.
Thank you for your generous donations which allow us to fulfill our mission!
Please note that a block of hotel rooms has been set aside for our group at a discounted rate of $149 per night. Call the Marriott at 630.986.4100; be sure to state that you are part of the BDAI Diamond Jubilee Gala, or follow this link: RESERVE ROOM. The cut-off date for special pricing is April 12th.
For additional information or questions about the 75th Anniversary Diamond Gala, please contact Lily Schwartz at (312) 427-1497.
To register for this event, please click this link: REGISTER
Springfield Legislative Days
EVENT CANCELLED
WE NEED COMMUNITY REPRESENTATIVES TO JOIN US IN SPRINGFIELD!
BDAI’s annual Springfield Legislative Days empowers individuals in the Illinois bleeding disorders community to impact the legislative process. We will provide training before the actual advocacy day so that each participant learns how to tell his or her story to the legislator. We will also practice a meeting before we make our legislative visits. Visits will be done in assigned groups (not individually). You will be educated and provided with materials about key issues. At the end of the training and mock meeting, you will be able to comfortably and effectively share information with legislators.
Springfield Legislative Days provide the opportunity to:
Meet face-to-face with your legislators who shape healthcare policy about bleeding disorders
Become involved in the decision-making regarding the critical issues that affect the continued access to the medications you or a family member need
Let your elected officials know what it is truly like to live with and be impacted by a bleeding disorder
Please note that this event requires business attire (no jeans, tee shirts, sneakers, etc). Please refrain from wearing clothing with company logos. Bring anything you may have used in the past to explain bleeding disorders in less than 5 minutes to legislators (such as short but impactful personal stories, photos, etc.). Children are a great way to personalize your story and are welcome to attend!
VERY IMPORTANT NOTICE: Please individually register every single person in your party who is attending and be sure to include the full address with zip code!
When: May 8th - 9th
Where: Hotel to be announced, Springfield, IL
All participants MUST attend the training on Wednesday night!
Tentative Agenda:
Wednesday, May 8 2024
3:00 PM – Arrive at Hotel to be announced (MUST be there by 6 pm)
6:30 PM – Welcome and Overview
6:45 PM – Dinner
7:15 PM – Legislative Advocacy Training
Thursday, May 9 2024
7:30 AM – Breakfast
8:30 AM – Depart to Capitol
9:00 AM – Arrive at Team Meeting Room
9:15 AM – Legislative Visits
12:00 PM - Re-group at Team Meeting Room for Group Photo
12:30 PM – Observation of Legislature in Session
1:00 PM – Depart Springfield
To register, please use this link: REGISTER HERE
Bradley Krueger Scholarship Workshop
BDAI is excited to offer a workshop for high school Juniors, Seniors, and current college students looking to apply for the Bradley Krueger Scholarship.
When: June 6th, 2024
Time: 5:30 PM - 8:00 PM
Where 210 S Desplaines St., Chicago, IL
Camp Warren Jyrch
Camp Warren Jyrch allows Illinois kids with bleeding disorders a chance to come together, empower each other, and learn more about their disorders, how to self-treat, and gain independence, all while experiencing everything that children without bleeding disorders experience at camp: arts and crafts, fishing, rope or challenge courses, running, jumping, swimming and sports of all kinds.
Consumer Insurance Conference
BDAI offers this event to provide current insurance and industry changes, updates, and tips for navigating care.
When: August 10th, 2024
Time: 9:00 AM - 3:00 PM
Where: 551 North Swift Road, Hilton Garden Inn
NBDF’s National Bleeding Disorders Conference
The National Bleeding Disorders Foundation (formally NHF)’s 76th Annual Bleeding Disorders Conference (BDC) will take place September 12-14, 2024, in Atlanta! We are excited to bring the bleeding disorders community together again for three incredible days of educational sessions, valuable networking opportunities, and exciting exhibits at the Georgia World Congress Center.
Community Connections Statewide Education Conference
This two-day event provides the community and BDAI the opportunity to outreach to a wider audience by offering education, advocacy resources, and networking.
When: October 19th, 2024 - October 20th, 2024
Time: 8:00 AM - 8:00 PM and 8:00 AM - 10:00 AM
Where: 70 Yorktown Center, Lombard, IL
Meet Jivi - Bayer
This program will include information about Jivi and how you can use the medication. Also, this program will present information on Jivi such as indication and usage, dosing overview, and clinical studies. This presentation will also highlight data on the pharmacokinetic coverage of Jivi.
This event will be presented in Spanish.
Date: 4/26/2024
Time: 6:00 PM CST
Where: Hyatt Place Chicago Midway Airport, 6550 South Cicero Ave, Chicago
To register, please use this link: REGISTER
Este programa incluirá información sobre Jivi y cómo puede usar el medicamento. Además, este programa incluye información sobre Jivi, como su indicación y su uso, la descripción general de la dosis y los estudios clínicos. Esta presentación también destacará los datos sobre la cobertura farmacocinética de Jivi.
Este evento será presentado en español.
Para registrarse, por favor use este link: REGISTRAR
Fecha: 26 de Abril
Hora: 6:00 PM (CST)
Donde: Hyatt Place Chicago Midway Airport, 6550 South Cicero Ave, Chicago
World Hemophilia Day
On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event this year is “Equitable Access for All: Recognizing All Bleeding Disorders”. The World Federation of Hemophilia (WFH) vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live.
For more information, please visit: https://wfh.org/world-hemophilia-day/
When: April 17th, 2024
Time: 6:00 PM (CST) - 8:00 PM (CST)
Where: The Royal Sonesta Chicago Downtown
Address: 71 East Wacker Drive Chicago, IL, 60601
Please note that this event is limited to 50 registrants.
To register, use this link: Register Here
Thank you to Sanofi for sponsoring this event.
Dia Mundial de la Hemofilia
6:00 PM 8:00 PM
The Royal Sonesta Chicago Downtown (map)
Google Calendar ICS
El 17 de abril de 2024, la comunidad mundial de trastornos de la coagulación se reunirá para celebrar el Día Mundial de la Hemofilia. El tema del evento de este año es “Acceso equitativo para todos: reconocer todos los trastornos de coagulación”. La visión de Tratamiento para Todos de la Federación Mundial de Hemofilia (FMH) es la de un mundo en el que todas las personas con trastornos de coagulación hereditarios tengan acceso a la atención medica, independientemente de su tipo de trastorno de coagulación, género, edad o lugar de residencia.
Para obtener más información, visite: https://wfh.org/world-hemophilia-day/
Cuándo: 17 de abril de 2024
Hora: 6:00 PM (CST) - 8:00 PM (CST)
Lugar: The Royal Sonesta Chicago Downtown
Dirección: 71 East Wacker Drive Chicago, IL, 60601
Tenga en cuenta que este evento está limitado para 50 personas inscritas.
Para registrarse, utilice este enlace: Regístrese Aquí
Gracias a Sanofi por patrocinar este evento.
HFA Symposium
Register today for the Hemophilia Federation of America (HFA) 2024 Symposium, April 11-13, 2024, in Indianapolis!
This event features opportunities to connect with your friends, family and members of our community, valuable educational sessions, and the sights of beautiful downtown Indianapolis.
There will be sessions on advocacy, pain management, addiction, parenting, and women and girls, and more! Plus, HFA will have an exciting Final Night Event!
For information on scholarships and registration, visit HFA Symposium
HEMLIBRA - Educational Event
Únase a Genentech para una presentación educativa sobre HEMLIBRA. En este evento, podrá aprender y preguntar sobre todos los aspectos del tratamiento con HEMLIBRA.
Cuándo: 23 de marzo de 2024
Hora:
Llegada - 5:30 PM (CST)
Comienza el evento - 6:00 PM (CST)
Dónde: Francesca's en 95th, 6248 95th St., Oaklawn, IL 60453
Tenga en cuenta que los asientos para este evento son limitados
Este evento es lleno, y la inscripción está ahora cerrada.
Join Genentech for an educational presentation regarding HEMLIBRA. At this event, you will be able to learn and ask about all aspects of HEMLIBRA treatment.
When: March 23rd, 2024
Time:
Check in - 5:30 PM (CST)
Event Begins - 6:00 PM (CST)
Where: Francesca's on 95th, 6248 95th St., Oaklawn, IL 60453
Please note, seating for this event is limited.
This event is full, and registration is now closed.
Strike Up Some Fun for Bleeding Disorders Awareness Month
Join us for a fun-filled afternoon at Bowlero Roselle where we will come together for fun, community, and new resources. For this event, shoe rental, food, and drinks will be provided.
When: March 16th, 2024
Time: 2:30 PM - 4:30 PM
Where: 1100 W Lake St., Roselle, IL 60172
Please register using this link: Register Here
NBDF's Washington Days
Make your voice be heard at NBDF’s Washington Days! Join us to promote advocacy in the Bleeding Disorders Community.
HEMGENIX National Webinar
Join us for the HEMGENIX National Webinar! During this virtual Webinar, there is an opportunity to hear from a doctor who has administered HEMGENIX. After the presentation, there will be a Live Q&A Session.
When: February 28th, 2024
Time: 6:30 PM - 7:30 PM (CST)
Where: Virtual
Bleeding Disorders Alliance Illinois 75th Anniversary Kick-Off
Sunday is Fun Day with BDAI! Come out to celebrate the 75th Anniversary of BDAI carnival style! We will have face painting, a magic show, balloons, food, and more. We will also have resources and information available about all of our 2024 events.
Where: 555 S Eola Rd, Aurora, IL 60504
When: February 18th, 2024
Time: 2:00 PM - 4:00 PM
Registration for this event is now closed.
HEMGENIX Webinar
Join us on February 15th for the Virtual HEMGENIX Webinar Presentation. The presentation will be approximately 30 minutes long with a Q & A session afterward. Please note, this presentation is for those (and family) living with Hemophilia B. This Webinar is presented by Dr. Maissaa Janbain, MD, MSCR of Tulane School of Medicine.
When: February 15th, 2024
Time: 6:30 PM (Check-In) and 7:00 PM (Presentation Begins)
Where: Virtual
Please register for this event by clicking this link: Register Here
A Zoom link will be sent on the day for all those that have reserved their spot.
Education Event
Guarde la fecha
Unirse a nosotros para nuestra última sesión educacional del ano. Tendremos una sesión educacional presentada por Takeda, “Reconocer y Responder a las Hemorragias.” Después una celebración chica para celebrar los días festivos. También tendremos una sesión de elefante blanco. Si desea participar, traiga un pequeño regalo valorado en $5.00 al evento y prepárese para divertirse. Verifique las fechas de vencimiento de cualquier dulce o regalo comestible.
Si tiene preguntas, por favor comuníquese con Maria, mherrera@bdai.org o ksheldon@bdai.org
Esta registracion ya está cerrada.
Cuando (When): Viernes 15 de diciembre 2023/Friday December 15, 2023, 6:00 PM CT
Ubicación (Location): Tuscany de Taylor Street
Dirección (Address): 1014 W Taylor Street, Chicago, IL 60607
Save the date! Join us for our last educational session of the year. We will have an educational session presented by Takeda, “Recognize & Respond to Bleeds.” We will also have a white elephant session. If you would like to participate, please bring a small gift valued at $5.00 to the event and get ready for some fun!
If you have any questions, please contact Maria at mherrera@bdai.org or Kent at ksheldon@bdai.org
This registration is now closed.
Winter Party-End of the Year Event
BDAI wants to celebrate with you and your family this year at our Winter Party Event.
Where: Holiday Inn Countryside
When: December 2nd, 2023
Address: 6201 Joliet Rd, Countryside, IL 60525
Time: 10:00 AM to 2:00 PM
On December 2nd, we will be hosting the BDAI Annual Event. Please come join us for games, food, and connecting with others in the community! December is a great time to share thanks and gratitude for the community. During lunch, there will be a short presentation.
Registration for this event is now closed.
Gene Therapy Educational Program
This educational program offers you and your family members the opportunity to:
Learn about HEMGENIX, the first and only gene therapy approved for Hemophilia B
Gain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session
Ask questions and receive new resources on gene therapy
This presentation is for Hemophilia B patients and caregivers.
Guests must register by Sunday, November 12th, 2023
Please use this link to register for this event: HEMGENIX
Consumer Insurance Conference
Please join us for this year's Consumer Insurance Conference.
Get to know your insurance at the 2023 Consumer Insurance Conference! BDAI's Consumer Insurance Conference offers interested individuals with important information regarding insurance. Choosing a healthcare plan that is right for you and your family is one of the most important decision you will make. This conference will focus on insurance policies, coverage, and advocacy. The first step to overcome insurance challenges is to understand where they come from and what the best decisions are for your family.
Wine Auction and Dinner
Please join us for a night of fine wine and food! Hosted by BDAI and our Champagne Sponsor CSL Behring.
Bring a bottle of your favorite wine (or wine related accessory) for the silent auction. Submit a brief description of your wine (or accessory) with an estimated value by October 23rd, 2023.
Reserve your spot as soon as possible as space is limited to 120 guests. To get your tickets, please call 312-427-1497.
Hispanic Heritage Celebration
¡Únase a nosotros en nuestra Cena de la Herencia Hispana! Este evento celebra a nuestros miembros hispanos de la comunidad de trastornos sanguineos a través del reconocimiento y apoyo.
This event is now closed.
My Journey to Jivi
Hosted by Bayer, the My Journey to Jivi speaker program brings the community together to hear inspiring firsthand stories of the defining moments and milestones that have shaped journeys from all walks of life.
Sign up using this link: My Journey to Jivi RVSP
You must RSVP by October 9th, 2023.
UNITE Walk
This walk is much more than just a fundraiser! It is an opportunity to celebrate our wonderful community of those living with or affected by a bleeding disorder. By participating in the UNITE Walk, you are helping to raise critical funds that allow us (BDAI) to assist those in need, promote patient advocacy, and educate those unfamiliar with bleeding disorders.
La terapia génica en la hemofilia: Venga para enterarse de qué se tratan todos esos rumores: ¡por curiosidad, para conocer los requisitos y mucho más!
¡Llegó la terapia génica! Acompáñenos a esta presentación de una hora para enterarse de cómo está diseñada la terapia génica para que funcione y por qué las pruebas de elegibilidad son el primer paso para emprender el camino de esta terapia. Hablaremos de los resultados de un ensayo clínico y lo que esto podría significar para usted.
Aprenda cómo comenzar el proceso y qué preguntas puede hacerle a su médico, como también oirá la experiencia de un paciente.
Por favor registar usando este link: La terapia génica en la hemofilia
Gene Therapy in Hemophilia: Come find out what all the buzz is about—from curiosity to eligibility and beyond
Gene therapy has arrived! Join Biomarin for a one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. We’ll share the findings from a clinical trial and what it could mean for you.
Learn how to get started, what questions to ask your doctor, and hear one patient’s experience.
This event is virtual.
Please register using this link: Gene Therapy in Hemophilia
BDAI Annual Meeting & Awards Dinner
BDAI’s Annual Meeting and Awards Dinner to celebrate and recognize those in our community who make a difference.
This event is sponsored by Novo Nordisk, Takeda, and Medexus.
Living With a Bleeding Disorder- A Focus on Mental Well-Being
Mental Well Being
Mental health is a state of well-being Exciting news for individuals with bleeding disorders! Mark your calendars for our upcoming virtual event on self-advocacy, scheduled for August 14th, 2023. Hosted by Bleeding Disorder Alliance Illinois, this event aims to empower and educate participants on the importance of self-advocacy within the bleeding disorder community. With informative workshops, engaging discussions, and expert speakers, attendees can expect to learn valuable skills and strategies to confidently navigate healthcare systems, insurance challenges, and daily life with a bleeding disorder. This virtual event promises a unique opportunity to connect with others facing similar challenges, share experiences, and foster a sense of solidarity among participants. Join us for this inspiring event as we come together to amplify our voices and advocate for better care and support for all and is an important topic to talk about for everyone, including those living with a bleeding disorder. That's why we've partnered with an expert to discuss ways to navigate mental health, as it includes our emotional, psychological, and social well-being.
Presented By: Judy Doyle
Register Now: https://secure.qgiv.com/for/zwpagq/event/a-novo-nordisk-dinner-event/
*There is a max seating of 25 available. So save your spot now!
Sponsored By:
Dinner Event - Altuviiio
NOW APPROVED!
ALTUVIIIO™ is an injectable medicine that is used to control and reduce the number of bleeding
episodes in people with hemophilia A. Come learn about this option for treatment with Sanofi.
Register Here: https://secure.qgiv.com/for/zwpagq/event/sanofi-dinner-event-altuviiio/
A Persuasive Argument for a New Hemophilia A Drug: Revolutionizing Treatment and Transforming Lives
Introduction:
Update about a groundbreaking new drug that has the potential to revolutionize hemophilia A treatment and transform the lives of millions affected by this rare bleeding disorder.
1. Addressing Unmet Needs:
Hemophilia A, a genetic disorder characterized by impaired blood clotting, significantly impacts the quality of life of those who suffer from it. Current treatment options, while effective, are not without limitations. Patients often require frequent intravenous infusions of clotting factor concentrates, which can be time-consuming, burdensome, and pose the risk of inhibitor development. This new hemophilia A drug, however, has the potential to address these unmet needs and improve patient outcomes.
2. Substantial Efficacy:
The clinical trial has demonstrated the striking efficacy of this new drug. By utilizing cutting-edge gene-editing technology, it targets and corrects the genetic mutation responsible for clotting factor VIII deficiency, the underlying cause of hemophilia A.
3. Convenience and Reduced Burden:
One of the most significant advantages of this new drug is its convenience and reduced treatment burden. Unlike traditional treatments, which require regular infusions, this drug has the potential to offer a prolonged therapeutic effect. Administered through a simple, one-time intravenous infusion, patients will experience fewer interruptions to their daily lives. This convenience will not only enhance adherence to treatment but also alleviate the emotional and physical toll that frequent infusions impose on patients and their families.
4. Prevention of Inhibitor Development:
One of the most dreaded complications of current hemophilia A treatment is the development of inhibitors, which neutralize the therapeutic effects of clotting factor concentrates. The promising feature of this new drug is its potential to prevent inhibitor development altogether. By addressing the genetic mutation at its source, it has the capability to provide sustainable and long-lasting clotting factor VIII production, making inhibitors a concern of the past.
5. Cost-Effectiveness:
Although concerns about the cost of novel treatments often arise, it is essential to consider the long-term benefits and potential cost-effectiveness of this new drug. By reducing the frequency of injectable medicine that is used to control and reduce the number of bleeding episodes in people with hemophilia A.
You can learn all about Altuviiio here: Patient Website | ALTUVIIIO™ [Antihemophilic Factor (Recombinant), Fc-VWF-XTEN Fusion Protein-ehtl]
Presented By: Jessie Pindilli
Sponsored By:
Back to School - Virtual Event - English Edition
Living with a Bleeding Disorder –
Becoming Your Own Best Advocate
*This event has been rescheduled from July 19th to August 2nd at the same time*
How familiar are you with self-advocacy? It’s how you identify what you need while living with a bleeding disorder and how you can effectively communicate those needs to others. Join this presentation to learn about 6 Powerful Tools to help you or a loved one learn about self-advocacy.
Presenter – Judy Doyle, Novo Nordisk Sr. Hemophilia Community Liaison
Register Here to Join Us: https://secure.qgiv.com/for/zwpagq/event/backtoschool-ask-the-expert/
🎉 Register and Win a Bookbag! 📚✨
Anyone who takes a moment to register and joins us for the entire virtual event will automatically be entered into our exciting Bookbag Giveaway! We will be giving away 1 boy bag & 1 girl’s bag! 🌟 So, what are you waiting for? Sign up today for a chance to win a new bookbag that will accompany you on all your new adventures. Don't miss out on this incredible opportunity - register now and let luck shine on you! 🤞✨
*Participants must be present for the entire event in order to be able to get a
chance to win a backpack.*
Sponsored By
Camp Warren Jyrch
Calling All Campers!!
We unfortunately had to update our registration process: Please Read Below
We truly apologize for any inconvenience – we originally posted the camp applications on-line; however, we have had great difficulties with the format.
We have mailed out to our community the application in a hard copy. You should be receiving it in a couple of days. If you don’t receive it by Monday, July 3 – please contact us at info@bdai.org – and give us an email or correct address that we can forward the application. If you would like to join us at camp for the first time please contact us at info@bdai.org to have the application sent to you.
Please complete these documents and return them to us as soon as possible. Understand that camper applications are accepted on a “first come, first serve” basis until all slots are filled.
Applications need to be submitted to us by July 8th and the medical forms by July 15th.
Thank you for your understanding.
Women's & Girls' Retreat
Theme: Me, Myself, & Mental Health.
We are thrilled to announce an upcoming event dedicated to the remarkable women within the hemophilia community. From July 21st @ 4 pm to July 23rd, 2023 @ 10 am, the Bleeding Disorder Alliance of Illinois will be hosting the "Women & Girls Retreat”. This gathering aims to celebrate the incredible journeys and inspiring stories of women affected by hemophilia. From patients to caregivers and advocates, this event will provide a platform for women to share their experiences, exchange knowledge, and strengthen their network of support. With specialist speakers and thought-provoking discussions, this event promises to empower women with knowledge, encouragement, and a profound sense of community. Mark your calendars, ladies, because together, we will bring the bleeding disorders community together!
Click Here to view or download the Event Agenda.
The ages for this event are 12+. LOCATION:
You MUST Register for this event so save your spot today! Hilton Chicago
https://secure.qgiv.com/for/zwpagq/event/womenandgirlsretreat/ Oakbrook Resorts 3500 Midwest Rd.
Oakbrook, IL 60523
Retiro de mujeres y niñas
Hilton Chicago, Oakbrook Resorts (mapa) Calendario de Google ICS
Tema: Yo, Yo Mismo y la Salud Mental.
Estamos encantados de anunciar un próximo evento dedicado a las mujeres notables dentro de la comunidad de hemofilia. Desde el 21 de julio a las 4 p. m. hasta el 23 de julio de 2023 a las 10 a. m., la Bleeding Disorder Alliance of Illinois organizará el "Retiro de mujeres y niñas". Esta reunión tiene como objetivo celebrar los increíbles viajes y las historias inspiradoras de las mujeres afectadas por la hemofilia. Desde pacientes a cuidadoras y defensoras, este evento proporcionará una plataforma para que las mujeres compartan sus experiencias, intercambien conocimientos y fortalezcan su red de apoyo. Con oradores especialistas y debates que invitan a la reflexión, este evento promete empoderar a las mujeres con conocimiento, aliento y un profundo sentido de comunidad. Marquen sus calendarios, señoras, porque juntos, uniremos a la comunidad de trastornos hemorrágicos.
Las edades para este evento son 12+
¡DEBE registrarse para este evento, así que guarde su lugar hoy! https://secure.qgiv.com/for/zwpagq/event/womenandgirlsretreat/
Haga clic aquí para ver o descargar la Agenda del evento: Click Here
UBICACIÓN:
Hilton Chicago
Centros turísticos de Oakbrook
3500 Midwest Rd.
Oakbrook, IL 60523
Sponsored By:
Sponsored By:
2023 Getting in the Game Junior National Championship
Essays MUST be turned in by July 20th at 2pm!
2023 Campeonato Nacional CSL Behring
July 21st at 2 pm is when essays MUST be turned in by!
Back to School-Virtual Event-Spanish Edition
Vivir con un trastorno hemorrágico: Convertirse en su propio mejor defensor
¿Qué tan familiarizado está con la autodefensa? Es cómo identifica lo que necesita mientras vive con un trastorno hemorrágico y cómo puede comunicar de manera efectiva esas necesidades a los demás. Únase a esta presentación para aprender sobre 6 herramientas poderosas para ayudarlo a usted o a un ser querido a aprender sobre la autodefensa.
Presentadora: A Novo Nordisk Patient Ambassador, Abdiel
Regístrese aquí para unirse a nosotros: https://secure.qgiv.com/for/zwpagq/event/back-to-shcool-ask-the-expert-virtual-spanish-edition/
🎉 ¡Regístrate y gana una mochila! 📚✨
¡Cualquiera que se tome un momento para registrarse y se una a nosotros para todo el evento virtual entrará automáticamente en nuestro emocionante sorteo de mochilas! 🌟 Entonces, ¿qué estás esperando? Regístrese hoy para tener la oportunidad de ganar una nueva mochila que lo acompañará en todas sus nuevas aventuras. No se pierda esta increíble oportunidad: ¡regístrese ahora y deje que la suerte brille sobre usted! 🤞✨
*Los participantes deben estar presentes durante todo el evento para poder obtener una oportunidad de ganar una mochila.*
Sponsored By:
50th Camp Celebration
Can you believe it!
50 years of Camp Warren Jyrch! When our first camp rolled out, Nixon was President, Bad, Bad, Leroy Brown was topping the charts, the Dolphins won the Super Bowl and Cubs fans would have to wait 43 more years for that elusive World Series win. In 1973 the world of Hemophilia was still trying to be heard; at times it could be scary. In order to aid in bridging this gap, Camp Warren Jyrch was created to provide a place of safety, support, and lifelong friendships being built.
On July 8th we are opening the doors to reconnect and celebrate our past by recognizing all past, current, and future campers with a simple get together. Please come to talk, eat, hangout, and share those memories/stories of past camps and remember all involved. This is a time to have some fun, hang out and just bring together our community for nothing more than celebrating our past and future whilst enjoying some relaxing fellowship. It is also a potluck, we will be providing, pop, grilling items, chips and some sides so bring your favorite or best dish! BDAI is so excited to see you and hang out with everyone!
Later this year we will have a more formal get together to honor and celebrate the brotherhood and sisterhood of campers for the years gone by. John and Lily along other will share their stories of crazy camp times, camp stories or campers remembered.
The Need to Know:
Date – July 8, 2023
Location – Busse Woods Forest Preserve - Shelter 11-South Grove
Busse Woods Forest Preserve-South Entrance: E Higgins Rd/Rte 72, west of N Arlington Heights Rd
Cook County, IL 60007 (near Elk Grove Village)
Time – 10:00 am to 3:00pm.
Register Here: https://secure.qgiv.com/for/zwpagq/event/50thcampcelebration/
Von Vendi Virtual Educational Program
Programa de Educación Virtual Von Willebrand iD/Von Willebrand iD Virtual Education Program
(This event WILL BE in Spanish but you will have the option to translate through Zoom)
Este evento será en Español. Unirse con nosotros para un programa educativo virtual:
Jueves 22 de Junio de 2023…………6:00 pm - 7:30 pm
Una charla de marca sobre Von Vendi que se utiliza para tratar la enfermedad de Von Willebrand.
Nikole A. es embajadora de Takeda y hablará sobre su viaje con VWD y el uso de Von Vendi.
Join us for a virtual educational program:
Thursday, June 22, 2023.……….6:00 pm - 7:30 pm
This educational program will be a branded talk about Von Vendi that is used to treat von Willebrand disease.
Nikole A. is a Takeda ambassador and will speak about her travel with VWD and the use of VonVendi.