Rise Together— a Virtual Teen Advocacy Retreat
Jun
22

Rise Together— a Virtual Teen Advocacy Retreat

Learn to advocate and be the voice for your bleeding disorder from the comfort of your own house.

Join BDAI teens (ages 13-18) with other powerful advocates as we embark on how to share your stories, what every day advocacy looks like and why it is important. Don’t worry this will be mixed with lots of fun.

The retreat kicks off with a box sent your way with goodies, and a door dash gift card for lunch. Following the retreat, be on the lookout for a cash stipend for attending!

*Spots are limited! Register TODAY!


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Educational Dinner with Genentech
Jul
15

Educational Dinner with Genentech

Join BDAI and our industry partner Genentech as we discuss Caregiver burnout over dinner. Location coming soon.

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Community Circle
Jul
18

Community Circle

SAVE THE DATE !

Our second Community Circle event is coming up July 18th! These community connecting programs are organized and hosted by volunteers. These are intended as an additional connection point for support and relationship building for our community throughout Illinois.


Registration coming soon. Contact Kelsey if you are interested in hosting an event kcunningham@bdai.org

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Hamburger Mary’s HAMBINGO FUNDRAISER
Aug
5

Hamburger Mary’s HAMBINGO FUNDRAISER

This general public fundraising event brings the fun and entertainment for all with Hamburger Mary’s wildly attending and long talked about HAMBINGO. Have a memorable time and raise some funds for BDAI while you do it!

More info coming soon!

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Camp Reunion!
Aug
22

Camp Reunion!

SAVE THE DATE !

Meet up with your old camp pals and reminisce about the good old days of Camp Warren Jyrch.

This is an afternoon of connecting, brief education over lunch, and hanging out doing outdoor activities at THE FORGE in LeMont. While this event is geared towards our previous campers, all are welcome. Not all activities are suitable for all ages.

This event requires a $10.00 deposit with registration. This deposit is refundable upon your arrival at the event on August 22nd. It will be forfeited if you register and do not attend Camp Reunion.

*Spots will be limited, please plan accordingly when the registration comes out!


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Community Circle
Sep
5

Community Circle

SAVE THE DATE !

Our third Community Circle event is coming up September 5th! These community connecting programs are organized and hosted by volunteers. These are intended as an additional connection point for support and relationship building for our community throughout Illinois.


Registration coming soon. Contact Kelsey if you are interested in hosting an event kcunningham@bdai.org

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UNITE Walk
Sep
19

UNITE Walk

2026 is already booked and we are READY for an amazing day of celebrating the bleeding disorders community and CRUSHING our 2025 fundraiser.

Want to get started early? Contact Kelsey kcunningham@bdai.org to start your team!

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Hispanic Heritage
Oct
10

Hispanic Heritage

Join BDAI as we celebrate Hispanic Heritage Month with our community. This is an afternoon and evening filled with connecting activities, education, and more, honoring our Hispanic bleeding disorders family.

This event is open to all members of the community. All education will be presented in Spanish.

Únete a la BDAI para celebrar el Mes de la Herencia Hispana junto a nuestra comunidad. Será una tarde y una noche repletas de actividades para fomentar los vínculos, sesiones formativas y mucho más, en homenaje a nuestra familia hispana de personas con trastornos hemorrágicos.

Este evento está abierto a todos los miembros de la comunidad. Todas las sesiones formativas se impartirán en español.

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cena y educación
Jun
20

cena y educación

Join BDAI and our industry partner CSL Behring for an afternoon of fun, hands on education, and a taco food truck in the park. This event is sure to fill up!

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Community Circle!!
Jun
17

Community Circle!!

Brand new to BDAI, we are excited to bring community support across the state with our volunteer led Community Circle events.

Find out more about our first one and what BDAI Community Circle events are all about on the community circle page. That will give you the link to register too!

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Virtual Education with Novo Nordisk
Jun
16

Virtual Education with Novo Nordisk

Join BDAI and Dr. Daisy Cortes as we navigate thriving around Hemophilia B. This virtual education is supported in partnership with Novo Nordisk.

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Adult Peer Support Educational Dinner
Jun
9

Adult Peer Support Educational Dinner

Listen to fellow bleeding disorders community peers as they discuss their journeys on Altuviiio. This evening at Wildfire is supported by Sanofi.

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Ruby Connection- a women’s virtual group
Jun
4

Ruby Connection- a women’s virtual group

Bleeding Disorders Alliance Illinois has partnered with Hemophilia Foundation of Michigan (HFM) to bring the Ruby Connection program to Illinois. Adult women in the bleeding disorders community will have the opportunity to come together for online social experiences that include an educational speaker or activity while connecting with other women in the community. The group is open to women affected by a bleeding disorder or involved in the bleeding disorder community.

Register to join Genny Moore & Mayra Cantu on Thursday, June 4th at 7pm CT for BDAI’s virtual women’s group. This evening will bring in Rick Starks to show us some Tai Chi and discuss the importance of movement, while also being safe! The Ruby Connection Program provides a space for women affected by bleeding disorders or involved in the bleeding disorders community to connect, learn, and socialize.

For attendees who RSVP at least three days in advance, actively participate, and have their cameras on during the session, a meal reimbursement gift card will be sent following the event.

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Chicago Fire Game--TICKETED EVENT
May
23

Chicago Fire Game--TICKETED EVENT

BDAI is excited to announce a community fundraiser! On May 23rd, catch the Chicago Fire Soccer Game; and when you purchase your tickets through the link below, you're directly supporting BDAI. Every ticket comes with an awesome jersey and puts $5 back into our community.

Spread the word with your friends, family, neighbors, and coworkers. Let's pack our section and make it the loudest one in the stadium! Note that this is an open public event, not a staffed BDAI event.

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Genentech educación virtual
May
6

Genentech educación virtual

Hay dos oportunidades para participar en esta formación virtual sobre el agotamiento de los cuidadores organizada por Genentech. Inscríbete a continuación en el evento del 6 de mayo. O bien, inscríbete en el evento del 7 de mayo, que comienza a las 8:30 CST, a través de la Fundación de Hemofilia del Sur de California.

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Family Camp
Apr
25

Family Camp

A day of adventure and memories are made with BDAI at our Family Camp! BDAI is excited to bring in Madonna McGuire Smith with TREE into Illinois to help host our Family Camp.

Madonna McGuire Smith is currently the Executive Director of Pacific Northwest Bleeding Disorders (PWNBD), Director of the YETI (Youth Effectively Transitioning to Independence) Conference and Camp Director of PNWBD bleeding disorder camp at Camp Tapawingo. Madonna has worked in bleeding disorders since 2009 serving as Development-Events Director for PNWBD and before that was Development Director at Western Pennsylvania Bleeding Disorders Foundation (WPBDF). Prior to working in bleeding disorders, Madonna worked in agricultural development internationally, living in Bulgaria for three years, where she was instrumental in creating a grain marketing system for the country after the fall of communism. She previously served as a high school and middle school teacher and coach. Madonna received her Bachelor’s Degree in Social Science/Secondary Education with a PE/Coaching Minor from the University of Northern Iowa. She went on to earn her Master’s of Public Administration from Iowa State University. Madonna’s husband and three oldest children have von Willebrand Disease and her youngest son, adopted from China in 2018, has severe Hemophilia A.

Help BDAI bring all the fanfare and excitement to our Family Camp at the Elk Grove Village Community Center. Enjoy the opportunity to attend an infusion clinic, participate in some camp activities and grow your family’s independence and expertise with a bleeding disorder on April 25th in Elk Grove Village.

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World Hemophilia Day
Apr
17
to Apr 18

World Hemophilia Day

  • Bleeding Disorder Alliance Illinois (map)
  • Google Calendar ICS

Mark your calendars for the global day of awareness and advocacy.

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Apr
14

Ruby Connections- Virtual Women's Meetup

Adult women in the BDAI bleeding disorders community will have the opportunity to come together for online social experiences that include an educational speaker or activity while connecting with other women in the community. The group is open to women affected by a bleeding disorder or involved in the bleeding disorder community.

Your personal link to join the meeting will be sent with your confirmation leading up to the event.

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Cena y educación
Apr
11

Cena y educación

Únase a BDAI y a nuestro socio Genentech para disfrutar de una velada educativa y distendida. Esta oportunidad se presenta en español.

Join BDAI and our partner Genentech for a lighthearted educational evening. This opportunity is presented in Spanish.

Register Here: cena y educación con Genentech

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Educational dinner and celebration of World Hemophilia Day
Apr
8

Educational dinner and celebration of World Hemophilia Day

Join your favorite bleeding disorders community as well come together with Sanofi in celebration of World Hemophilia Day.

We will doing a goal setting activity with Sanofi following our dinner at Italian Village Restaurant.

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Family Camp INFO SESSION
Apr
7

Family Camp INFO SESSION

Join us VIRTUALLY with our award winning, nationally recognized camp leaders from Hemophilia Foundation of Michigan to learn all the ins and outs of Camp Bold Eagle. We want to ensure you and your child are prepared for a fun filled safe summer with HFM at camp!

Link to meeting will be sent upon confirmation of registration for this info session.

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BDAI Virtual Hang out!
Mar
28

BDAI Virtual Hang out!

Join BDAI for a casual 30-minute virtual hangout from the comfort of home before the National Bleeding Disorders Foundation’s live evening celebration begins at 6:00 PM.

We’ll spend a little time connecting, sharing a few Bleeding Disorders Awareness Month surprises, and enjoying some laughs together before we send everyone off to enjoy the NBDF event.

Tune in to the NBDF celebration here:

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Springfield IL Hill Day
Mar
25

Springfield IL Hill Day

Now is your time to share your story and continue to grow your advocacy efforts for your family and BDAI.


Join BDAI as we come together with Gateway Bleeding Disorders Association to raise awareness of our needs with bleeding disorders in Illinois.

The button above will take you to a google form to finalize your registration

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Cena y educación
Mar
21

Cena y educación

Únase a BDAI en nuestra colaboración con Novo Nordisk para disfrutar de una velada dedicada a la educación y la conexión.

Esta velada se presenta en español.

Join BDAI as we partner with Novo Nordisk for an evening of education and connection. This evening is presented in Spanish.

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Advocacy Education and Dinner
Mar
12

Advocacy Education and Dinner

Join BDAI as they partner with Takeda for an Advocacy Education opportunity in Chicago. This is your chance to grow your education and become a stronger advocate for those you love living with a bleeding disorders.

This evening brings education and a meal to you and your family with BDAI.

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March is Bleeding Disorders Awareness Month!
Mar
1
to Mar 31

March is Bleeding Disorders Awareness Month!

  • Bleeding Disorder Alliance Illinois (map)
  • Google Calendar ICS

Mark your calendars and be on the lookout for news about how you can support Bleeding DIsorders Awareness Month! This is a month-long effort to raise awareness about what it takes to be successful with a bleeding disorder.

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Dinner and Education
Feb
20

Dinner and Education

Join BDAI with Sanofi for an educational dinner presented in Spanish at Francesca’s on 95th. This is an opportunity to learn more about Altuviiio in a very fun and interactive way.

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Heart-2-Heart
Feb
15

Heart-2-Heart

BDAI had such a blast at WinterFest, we want to come together and celebrate community this Valentine’s Day. We are excited to bring an educational opportunity, some Valentine’s Day family fun, lunch, and an opportunity to mingle with our sponsors on February 15th in Aurora.




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Galentine’s
Feb
11

Galentine’s

Join BDAI for a very special Ruby Connections as we leave our virtual meetings behind for an in-person screening of Dismissed, dinner, and discussion. This evening is for the Females of BDAI over age 13.

Join us on February 11th, 2026 at Movement on Montrose. There is limited parking in the lot but street parking is available.

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cena y educación
Dec
13

cena y educación

Unirse con nosotros para una sesión educativa presentada por Takeda, cena, y juego de lotería!

Los esperamos el sábado 13 de deciembre de 2025 a las 6:00 pm.

 

Join us for an educational session presented by Takeda, dinner, and a bingo game! We look forward to seeing you on Saturday, December 13, 2025, at 6:00 pm.

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Dinner and Education
Dec
10

Dinner and Education

Join BDAI as we partner with Pfizer for a wonderful opportunity over dinner to learn about Hympavzi.

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Ruby Connection- a women’s virtual group
Dec
9

Ruby Connection- a women’s virtual group

Bleeding Disorders Alliance Illinois has partnered with Hemophilia Foundation of Michigan (HFM) to bring the Ruby Connection program to Illinois. Adult women in the bleeding disorders community will have the opportunity to come together for online social experiences that include an educational speaker or activity while connecting with other women in the community. The group is open to women affected by a bleeding disorder or involved in the bleeding disorder community.

Register to join Genny Moore & Mayra Cantu on Tuesday, December 9th at 7pm CT for BDAI’s 2nd virtual session. The Ruby Connection Program provides a space for women affected by bleeding disorders or involved in the bleeding disorders community to connect, learn, and socialize.

Through HFM's generous support, a grant has been provided to reimburse meals (up to $30) for attendees who RSVP at least two weeks in advance, actively participate, and have their cameras on during the session. 

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WinterFest
Dec
6

WinterFest

Join BDAI with our platinum sponsor Sanofi as they present education on mental well being through the holiday season. Then enjoy a luncheon and connecting with other industry partners and community members.

Our Winterfest event has reached capacity. If you are hoping to attend, please click below to join the WAITLIST.



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Giving Tuesday
Dec
2
to Dec 3

Giving Tuesday

A global movement that is your opportunity to raise awareness, share your story, and donate to your favorite causes.

Learn more at www.givingtuesday.org and visit our website to find some great facts on bleeding disorders to share on Giving Tuesday! Your Giving Tuesday donation goes straight to funding our programs that grow our mission across the entire state of Illinois.

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Thankfulness and your mental health. A discussion over dinner.
Nov
21

Thankfulness and your mental health. A discussion over dinner.

Join BDAI as we partner with Octapharma for a wonderful opportunity over dinner to learn and grow your efforts in your mental health journey as a patient/caregiver for those with a bleeding disorder.

This event is presented in Spanish.

Únase a BDAI en nuestra colaboración con Octapharma para disfrutar de una maravillosa oportunidad durante una cena en la que aprenderá y desarrollará sus esfuerzos en su trayectoria de salud mental como paciente o cuidador de personas con trastornos hemorrágicos.

Este evento se presenta en español.

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Education, Community Connecting, and Dinner
Nov
13

Education, Community Connecting, and Dinner

Bleeding Disorders Alliance Illinois is proud to partner with Sanofi on November 13th in Naperville, IL.

This is a great opportunity to connect with fellow BDAI community members while you grow in your education surrounding bleeding disorders.

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Learn about a new approach to VWD treatment- virtually
Nov
4

Learn about a new approach to VWD treatment- virtually

Bleeding Disorders Alliance Illinois is proud to partner with Star Therapeutics for a virtual learning opportunity on Tuesday, November 4th.

This is a great opportunity to learn more about von Willebrand disease and what is on the horizon in treatment.

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Pathfinders with GutMonkey
Oct
25

Pathfinders with GutMonkey

The great outdoors is for everyone with this accessible invitation to a local nature spot. For individuals, friends, and families, Pathfinders events are specially crafted to bring together folks affected by all bleeding disorders. We invite families and folks from all walks of life to discover the beauty of the outdoors while forging lasting connections with others who understand the journey.

 

Program is facilitated by GutMonkey whose mission is to provide foundational, life-changing experiences for folks with chronic health conditions that improve health outcomes, build communities, dismantle stigma, and increase awareness.  

 

Event Highlights

  1. Empowering nature walk, stroll, and roll: Venture through beautiful trails, surrounded by the calming presence of nature. The walk is thoughtfully designed to accommodate all fitness levels, ensuring everyone can participate at their own pace.

  2. Educational Insights: Your knowledgeable GutMonkey facilitator will share valuable information about managing bleeding disorders in the great outdoors. Learn tips, tricks, and safety measures to embrace the beauty of nature with confidence.

  3. Supportive Community: Connect with other families and individuals in the bleeding disorders community, fostering a sense of camaraderie and understanding. Share experiences, stories, and triumphs, knowing you are not alone on this journey.

  4. Awareness and Advocacy: Raise awareness about bleeding disorders and advocate for improved resources and support within the community. Together, we can create a stronger voice for positive change.

  5. Celebrating Resilience: Commemorate the resilience of the bleeding disorders community through inspiring moments shared during the event.

 

Pathfinders is made possible through a healthcare contribution from Sanofi.

 

Program will take place rain or shine. Trail mix bar offered before the hike. Pizza lunch served after.

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