The great outdoors is for everyone with this accessible invitation to a local nature spot. For individuals, friends, and families, Pathfinders events are specially crafted to bring together folks affected by all bleeding disorders. We invite families and folks from all walks of life to discover the beauty of the outdoors while forging lasting connections with others who understand the journey.

Program is facilitated by GutMonkey whose mission is to provide foundational, life-changing experiences for folks with chronic health conditions that improve health outcomes, build communities, dismantle stigma, and increase awareness.  

Event Highlights

1. Empowering nature walk, stroll, and roll: Venture through beautiful trails, surrounded by the calming presence of nature. The walk is thoughtfully designed to accommodate all fitness levels, ensuring everyone can participate at their own pace.

2. Educational Insights: Your knowledgeable GutMonkey facilitator will share valuable information about managing bleeding disorders in the great outdoors. Learn tips, tricks, and safety measures to embrace the beauty of nature with confidence.

3. Supportive Community: Connect with other families and individuals in the bleeding disorders community, fostering a sense of camaraderie and understanding. Share experiences, stories, and triumphs, knowing you are not alone on this journey.

4. Awareness and Advocacy: Raise awareness about bleeding disorders and advocate for improved resources and support within the community. Together, we can create a stronger voice for positive change.

5. Celebrating Resilience: Commemorate the resilience of the bleeding disorders community through inspiring moments shared during the event.

Pathfinders is made possible through a healthcare contribution from Sanofi.

Program will take place rain or shine. Trail mix bar offered before the hike. Pizza lunch served after.

Join BDAI and Gutmonkey as they present their Leading Edge programming, sponsored by Pfizer. BDAI is so excited to be bringing the Gutmonkey crew to Illinois. This is a phenomenal opportunity to learn and grow confident in your bleeding disorder. 

Following Gutmonkey’s key note presentation, BDAI youth will continue this programming with Gutmonkey. 

Parents and caregivers will have the opportunity to grow their education in bleeding disorders and sports, insurance, and school partnerships.  

Bleeding Disorders Alliance Illinois has partnered with Hemophilia Foundation of Michigan (HFM) to bring the Ruby Connection program to Illinois. Adult women in the bleeding disorders community will have the opportunity to come together for online social experiences that include an educational speaker or activity while connecting with other women in the community. The group is open to women affected by a bleeding disorder or involved in the bleeding disorder community.

Register to join Genny Moore & Mayra Cantu on Tuesday, October 14 at 7pm CT for BDAI’s 2nd virtual session. The Ruby Connection Program provides a space for women affected by bleeding disorders or involved in the bleeding disorders community to connect, learn, and socialize.

Through HFM's generous support, a grant has been provided to reimburse meals (up to $30) for attendees who RSVP at least two weeks in advance, actively participate, and have their cameras on during the session. 

Acompáñenos en una cena educativa y conozca a los miembros de la comunidad BDAI junto con nuestro socio colaborador CSL Behring.

Join us for an educational dinner and connecting with BDAI community members with our supporting partner CSL Behring. This evening is presented in Spanish.

Join BDAI and Gateway in a joint educational dinner opportunity in partnership with Sanofi in O’Fallon IL at Bella Milano.

Reconnect with your inner child while picking apples with your BDAI family! BDAI is back at Windy Acres Farm for our second annual Fall Family Fun.  This Community Connecting event is bigger than last year with opportunities to meet with our industry partners in a casual setting, along with a few amazing education sessions sprinkled throughout the day.  Don't forget the great raffle at the end of it!. The day will be packed with exciting activities like visiting the petting zoo, playing mini golf, and zooming down the zip lines. We can't wait to kick off this fall season together!

Learn about a new therapy with subcutaneous injection for Hemophilia A and B with Sanofi.

Join your BDAI friends following the walk for an educational opportunity and a chance to rest and eat while learning about Hympavzi with our supporting partner Pfizer.

Join your BDAI friends following the walk for an educational opportunity and a chance to rest and eat while learning with our supporting partner Sanofi.

¡RESERVA LA FECHA!

13 de septiembre de 2025, 5:00 pm

Reunir a la comunidad hispana BDAI para participar en educación y celebración en honor a las contribuciones y la influencia de los hispanos y latinoamericanos en la comunidad de trastornos hemorrágicos de Illinois.

Save the date for Hispanic Heritage Celebration, bringing the BDAI Hispanic community together to engage in education and celebration in honor of the contributions and influence of Hispanic and Latino Americans in the Illinois bleeding disorders community!

El 28 de agosto a las 7pm, estaremos organizando una sesión educativa virtual con nuestra comunidad hispana patrocinada por Pfizer.

Adversidad, Fortaleza y Resiliencia 

Público Objetivo: Pacientes y Cuidadores En este resumen se abordan temas como afrontar una enfermedad crónica, comunicarse con el equipo de atención médica y otras personas, las consideraciones financieras de la atención médica a lo largo de la vida y la importancia de mantenerse físicamente activo con actividades adecuadas. Esta discusión incluye módulos sobre la comunicación con el equipo de atención médica, mantenerse físicamente activo, la gestión de su atención, el apoyo al tratamiento y una revisión del seguro.

Podemos ofrecer una tarjeta de regalo para una cena de $25.00 que se enviará por correo después del evento a quienes participen y dejen sus pantallas encendidas todo el programa. Será para las primeras diez familias que se registren. 

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On August 28 at 7 p.m., we will be hosting a virtual educational session with our Hispanic community sponsored by Pfizer.

Adversity, Strength, and Resilience

Target Audience: Patients and Caregivers This overview addresses topics such as coping with chronic illness, communicating with your healthcare team and others, financial considerations of healthcare throughout life, and the importance of staying physically active with appropriate activities. This discussion includes modules on communicating with your healthcare team, staying physically active, managing your care, treatment support, and an insurance review.

We can offer a $25.00 dinner gift card that will be mailed after the event to those who participate and leave their screens on for the entire program. It will be for the first ten families to register.

Join us for this virtual gathering that fosters open communication, allowing for updates and information sharing.

We will meet on Microsoft Teams. Link for meeting will be delivered within 24 hours of meeting to email of those registered.

Bleeding Disorders Alliance Illinois has partnered with Hemophilia Foundation of Michigan (HFM) to bring the Ruby Connection program to Illinois. Adult women in the bleeding disorders community will have the opportunity to come together for online social experiences that include an educational speaker or activity while connecting with other women in the community. The group is open to women affected by a bleeding disorder or involved in the bleeding disorder community.

Register to join Genny Moore & Mayra Cantu on Tuesday, August 5th at 7pm CT for BDAI’s 1st virtual info session. The Ruby Connection Program provides a space for women affected by bleeding disorders or involved in the bleeding disorders community to connect, learn, and socialize.

Through HFM's generous support, a grant has been provided to reimburse meals (up to $30) for attendees who RSVP at least two weeks in advance, actively participate, and have their cameras on during the session. 

Join BDAI as we partner with Novo Nordisk for a dinner and education. This evening is presented in Spanish.

Únase a BDAI en nuestra colaboración con Novo Nordisk para una cena y formación. Esta velada se presenta en español.

Learn to advocate and be the voice for your bleeding disorder from the comfort of your own house.

Join BDAI and HFM teens (ages 13-18) with other powerful advocates as we embark on how to share your stories with your representatives, what every day advocacy looks like, mixed in with lots of fun.

The retreat kicks off with a box sent your way with goodies, and a door dash gift card for lunch. Following the retreat, be on the lookout for a cash stipend for attending!

*Spots are limited! Register TODAY!

Join BDAI with an evening sponsored by Sanofi with dinner and a branded education discussion to learn about their product Qfitlia.

This educational dinner with Cynthis Chavez, presenting in Spanish, with Sanofi will be discussing rebalancing Hemophilia A and B therapy with subcutaneous injections.

Grab your friends for a fun night out raising funds and awareness for BDAI. Enjoy some appetizers, a couple drinks, and a round of bingo with your ticket! Additional bingo cards available for purchase throughout the evening. There will be awesome baskets put together to be raffled off, as well as fun bingo prizes!

There will be additional food and beverages for purchase, as well as non-alcoholic options available.

This event will sell out, please get your tickets early for the fun!

Únase a nosotros para hablar sobre cómo estar preparado para una emergencia de hemofilia.

Entendiendo Sus Opciones de Seguro (Comprensión de sus opciones de seguro médico)

Sabado 3 de mayo de 2025
5:30pm: registración
600pm: cena

Patrocinado por Genentech.

"Entendiendo Sus Opciones de Seguro Médico" (Understanding Your Health Insurance Options)

Saturday, May 3, 2025
5:30pm check in
6:00pm dinner

Sponsored by Genentech.

Join us to discuss advancements in hemophilia over a dinner at Maggiano’s Little Italy in Schaumburg.

Celebrate World Hemophilia Day with your bleeding disorders community at the Ivy Room with beaded bracelet making, selfie stations and DIY photo frames. We can’t wait to see you and celebrate the bond that comes with being a part of the bleeding disorder family.

CLS Behring and Optum Infusion Pharmacy are generously sponsoring an evening in Wrigleyville! We’ll learn about living a healthy and active lifestyle then watch the Chicago Cubs take on the Texas Rangers in an indoor/outdoor rooftop suite with food and drink service as well as TVs to watch the at Wrigley Field. Once registration opens, you’ll want to act fast - seating is limited! Ages 10 and up only, please.

Grandes Objetivos, Pequeños Pasos

Metas grandees, pasos pequeños en esta sesión interactiva, identificara sus metas y aprenderá como hacerlas realidad, incluyendo la identificación de las habilidades que necesitara y como desarrollarías. Como crear su kit de herramientas para la defensa de derechos. Obtenga las herramientas que necesita para defender sus derechos con éxito..

Presentatado por Sanofi 

Viernes 21 de marzo de 2025

6:30 pm

Beatrix

272 Oakbrook Center

Oakbrook, Illinois 60523

Big Grove Tavern

1 E. Main Street, Champaign, IL 61820.

The evening includes dinner. More details on registration page.

Sponsored by Optum

Join Novo Nordisk’s, Michael Norwood, for dinner and an educational presentation on their newest product, Alhemo® (concizumab-mtci). Alhemo is the first and only prefilled, subcutaneous pen for people who have hemophilia A or B with Inhibitors. Alhemo is used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children 12 years of age and older.

Enjoy dinner at City Works in Schaumburg near Woodfield Mall, next to the Hyatt hotel, with easy access to and from I-90/I-290.

Thursday, March 6, 6pm-8pm
City Works
1850 East Golf Road
Schaumburg IL 60173

Únete a BDAI y Takeda en la presentación de Hello Talk: Mi Factor Mi Cuerpo en Tuscany en Taylor a las 6:00 pm

También tendremos una sesión de elefante blanco. Si desea participar, traiga un pequeño regalo valorado en $10.00 al evento y prepárese para divertirse.

Verifique las fechas de vencimiento de cualquier dulce o regalo comestible.

Esta presentación será en español. Todos son bienvenidos.

Join BDAI with Takeda as they present the Hello Talk: My Factor My Body at Tuscany on Taylor at 6:00 pm.  

We will also have a white elephant session. If you would like to participate, please bring a small gift valued at $10.00 to the event and get ready for some fun.

If your gift is edible, please check expiration dates. 

This presentation will be in Spanish. All are welcome to attend.

Please RSVP by December 6, 2024.