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About

We are pleased to invite you to this year’s Virtual Community Connections Weekend, formerly known as Statewide Family Education Weekend. We are introducing this new title, Community Connections Weekend, because we want to acknowledge the event for what it truly is, a weekend to connect with the community. We know this year will be different, but we're excited to offer a virtual space to learn, engage, and network. We will be hosting some of the best educators and speakers from around the country with plenty of opportunities to provide you with cutting-edge information that will help you continue to live your best lives possible. This year’s virtual teen track will include interactive workshops and educational games.

Agenda

Thursday, September 24th

BDAI’S Annual Meeting

7:00pm-7:20pm

Welcome followed by Board Report by Bob Robinson - Executive Director, Michael Towner – Board President, Shanna Garcia – Treasurer

7:20pm-8:00pm

Special Presentation – Blue Sky Project, NHF’s initiative to imagine the state of inherited bleeding disorders community in 2030 by Leonard Valentino, MD, CEO National Hemophilia Foundation

Meet Leonard Valentino, MD

Friday, September 25th

6:00pm-7:00pm Keynote Presentation: Connecting with One Another, Cazandra Campos-MacDonald

Meet Cazandra Campos-Macdonald

7:00pm-8:00pm Covid-19, Health Updates for the Bleeding Disorders Community - Dr. Lisa Boggio and Dr. Mindy Simpson of Rush Hemophilia and Thrombophilia Center

Meet Lisa Boggio, MD Meet Mindy Simpson, MD

Saturday, September 26th

10:00 am - 11:00am Medical Marijuana – National Hemophilia Foundation

Breakout Session 1

11:00am - 12:00pm Put Yourself Out There: Sharing and Advocating for Bleeding Disorders Takeda (English)

11:00am - 12:00pm Autodefensa: compartiendo su historia by Takeda (Spanish)

12:00pm - 12:30pm Break

12:30pm - 1:30pm Investigaciones en terapia génica: entendamos la ciencia (Spanish) by BioMarin

Getting to Know Gene Therapy Research: Behind the Science and Practical Considerations (English) by BioMarin

Breakout Session 2

1:30pm - 2:30pm Constructive Conversations - Pfizer

1:30pm - 2:30pm Evaluating Internet Resources - Hemophilia Federation of America

2:30pm - 3:30pm Current and New Treatments - Dr. Jonathan Roberts of Bleeding and Clotting Disorders Institute

Meet Jonathan Roberts, MD

3:30pm - 4:30pm Bleeding Disorders Trivia - National Hemophilia Foundation

Click Here to Register

Teens, 13-18 years old, have a special activities on Saturday the 26th! Visit our Young Adult Page to view that Agenda!

Premiere sponsors

Exhibitors