The Bleeding Disorders Alliance Illinois (BDAI) exists to improve the quality of life for persons affected by hemophilia and other inherited bleeding disorders.
BDAI supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle.
These rare diseases, which affect about 1% of the general population, are often difficult to diagnose and are two of the most costly chronic disorders to treat. The ability to access reliable and unbiased information is especially important for families seeking answers and support soon after the initial diagnosis. BDAI serves as a non-profit connection between its members and the many medical providers, treatment centers, public and private insurance agencies and government programs that offer medical and financial assistance.
The organization also offers a welcoming community for families to meet, interact, and share information and advice. By providing popular social and education events for youth, families and parents throughout the year, BDAI helps foster a sense of connection between its members and provides continual opportunities to learn new ways to manage life with these disorders.
Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical providers, and government agencies while representing the bleeding community in the world at large.
The Bleeding Disorders Alliance Illinois believes that, with the proper support and resources, its members have the potential to be defined not by their conditions, but by their contributions to the world.